National Celiac Disease Awareness Day: Towards a Healthier Life
Observing National Celiac Disease Awareness Day on September 13th reminds us all to better understand this autoimmune condition. Globally, on May 16, we unite on International Celiac Disease Awareness Day. Through these occasions, we can garner comprehension and compassion for individuals facing this circumstance every day.
Featured in: September - Awareness Months, Days & Observances.
Why National Celiac Disease Awareness Day Matters
Celiac disease, also known as coeliac disease, celiac sprue, non-tropical sprue, or gluten-sensitive enteropathy, is when your body attacks your healthy tissues. It's crucial to carefully manage this condition through a strict gluten-free diet, as there are no other current effective treatments.
So, it's inherent to keep raising awareness about celiac disease to foster support for research funding. This day serves not only to dispel misconceptions but also to share accurate information that highlights the realities faced by those affected, and advocate for improved access to gluten-free alternatives and public accommodations.
We have a responsibility to mold a more well-versed and inclusive society. Even without personally being affected by the disease, let’s wear light green ribbons to symbolize our solidarity.
What to Do If You Or Someone You Know Have Celiac Disease
- Follow strict dietary restrictions and learn to spot gluten in unexpected places.
- Work with a nutrition professional specializing in celiac disease to help you maintain a balanced gluten-free diet.
- Build a support network through friends, family, or support groups to share and receive emotional comfort, share strategies, and advocate for the celiac community.
- Check in regularly with a healthcare provider to monitor your body's response to the gluten-free diet and catch potential complications early.
- Educate yourself about celiac disease and share this knowledge with loved ones to create a supportive environment and lead gluten-free lives. Explore UChicago Medicine’s Celiac Center as your starting point.
- Visit and support related organizations like Beyond Celiac and Celiac Disease Foundation.
Data and Statistics
Celiac disease affects approximately 1 in every 100 people globally. This autoimmune disorder is triggered by gluten consumption1. Moreover, cases have doubled every 15 years in Western countries, according to Alessio Fasano, MD, Chief of Pediatric Gastroenterology and Nutrition and Director of the Center for Celiac Research.
An estimated 2.5 million Americans in the United States may have the condition without knowing it, for the symptoms can go unnoticed. Alarmingly, 83% of people with celiac disease are undiagnosed or misdiagnosed with other conditions.
Brief Timeline of National Celiac Awareness Day
The Celiac Disease Foundation establishes National Celiac Disease Awareness Day on September 13 in tribute to Dr. Samuel Gee, the first researcher to link celiac disease to diet. His paper “On the Coeliac Affection” first described the disease as a type of chronic indigestion, making him the leader in celiac disease research.
The U.S. Senate passes a resolution officially recognizing National Celiac Disease Awareness Day.
The National Institutes of Health (NIH) launches the "Celiac Disease Awareness Campaign" to enlighten the public about celiac disease.
The FDA sets a rule on "gluten-free" labeling for food, providing clear guidelines to food manufacturers and safe and informed food choices for those with celiac disease.
The Celiac Disease Foundation launches the "iCureCeliac" patient registry to accelerate research toward finding treatments and a cure.
Conclusion
Remember, behind the statistics of Celiac Disease are real people navigating real struggles. Let National Celiac Disease Awareness Day be not just for dissemination of facts but a platform for understanding. Picture the child saying no to birthday cake, or the adult meticulously scrutinizing food labels - this is their reality.
As we educate ourselves and lobby for clearer food labeling, we make everyday a little easier for those affected. It's more than just a diet - it's a lifestyle they didn't choose but bravely embrace. Let empathy guide us to make their journey smoother.
FAQs (Frequently Asked Questions)
Celiac disease is an autoimmune disease where ingestion of gluten leads to damage in the small intestine. It's caused by an immune reaction to eating gluten, a protein found in wheat, barley, and rye.
Celiac disease affects about 1 in 100 people worldwide.
Symptoms may include abdominal pain, vomiting, persistent diarrhea or constipation, fatigue, weight loss, and skin rashes. A strict gluten-free diet is the only treatment for Celiac disease.
A diagnosis of celiac disease is typically confirmed through a two-step process: a blood test for antibodies specific to the condition, followed by a biopsy of the small intestine.
The Celiac Disease Foundation commemorates National Celiac Disease Awareness Day on September 13, honoring Dr. Samuel Gee, who established the first dietary link to the ailment.
| 1 | Parra-Medina, R., & Cherñavsky, A. C. (2013). Celiac disease. Autoimmunity - NCBI Bookshelf. |
Mike is a degree-qualified researcher and writer passionate about increasing global awareness about climate change and encouraging people to act collectively in resolving these issues.
Fact Checked By:
Isabela Sedano, BEng.
